Well every nurse, doctor and preemie parent I have met has warned me of this "roller coaster" ride called NICU. Yesterday we had such a high, and today I hit such a low. After talking to the doctor today, she confirmed that the results from the ultrasound yesterday showed that all the blood is gone. But it also showed that there was an area of brightness on her brain tissue. I don't remember exactly how the doctor said it, it was pretty much a haze, I wanted to break down. Something about they will do a MRI before she goes home and will let us know what that means then. I asked what that meant and she said it could mean a brain injury and there was some talk about a cyst. After the dr left my mind was racing. I asked Briella's nurse what exactly a brain injury was, like is Cerebral Palsy a brain injury? She replied that I just need to wait until the MRI and they will explain more then. I have googled and googled an can't figure out what the bright spots on the ultrasound could mean. I think I will press for possible answers tomorrow. As always, Brian is calm and just says there is nothing to stress about, we'll just have to wait and see.
After the doctor told me about the bright areas, I asked how her murmur sounded. She said, with a regretful look, that it is not as soft as it was yesterday. But it did sound somewhat softer than last week.
Briella lost 10 grams and is 1lb 14oz. They are going to try this week to take her off CPAP and move her to nasal cannula (just a regular oxygen with no pressure help to keep her lungs open!)
I learned my lesson of getting my emotions so high. Hopefully I can wake up tomorrow with more strength and hope than I have tonight. The highlight of my day is being able to kangaroo with her. I usually get to hold her at least 2.5 hours a day.
Please enjoy the pictures below. My mom captured them during Briella's head massage she gets every 3 hrs. They remove all of the mask and massage so it doesn't irritate the skin so much. The picture with her eyes closed just makes me want to cuddle up with her and kiss her all night long.
Please continue to pray that her PDA closes, she gains weight, and is healthy and happy.
Dear Stacy,
ReplyDeleteMy Prayers with You, and Briella, Daddy and sissy, and Family Always... Day In Day Out! Stay Strong, and Stay Bless on your Roller Coaster and Know God Hears all prayers and Delivers Miracles Everyday!!! You are an Amazing Woman and Briella is a Fighter just as strong if not stronger as the Beautiful Woman who carried her Bravely and Nurturing for 24 wks and who is there for her 24/7 battling this coaster with her!!! My Prayers Continue for You and Yours and Big ((HUG)) to You all!!!
You are both strong & will get through this. My daughters keep asking when baby Briella will get to go home with you ( they are 11, 9, & 7) I tell them as soon as she's big & strong enough so keep sending positive thoughts for her!
ReplyDeleteThanks for sharing those photos, she is just precious & has such a nice head of blonde hair! The smile yesterday was sweet too!
Thank you for the continued thoughts and prayers! It is appreciated greatly!!
ReplyDeleteBaby girl is in my prayers.
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