We got the results of Briella's brain ultrasound this morning. The doctor said there is half the blood that was there last week. Great news!! He is still really concerned about her heart. The PDA does not sound any less. But as of today they are not treating with medicine yet. I'm praying hard it closes without meds or surgery & soon.
Daddy got to hold baby girl for 2 hours today. It is just amazing how well she does when she's laying on her parents! Specifically she does not have any negative alarms. If she alarms its because her oxygen needs to be turned down! It's a great feeling that she needs us as much as we need her.
We finally got to spend some time with her where her both eyes were open! It's so amazing to be able to look into her eyes after 14 days!! She's 2 weeks today!!
Today the doctor asked me if I minded showing my daughter to a family that was visiting. It was a mother and her 23 year old son who was born in this same NICU at 26 weeks and 1lb 12 oz 23 years ago. He just graduated from K State. I could tell from our brief visit that he was intelligent. It gave me hope. He had never seen a baby that was the size he was at birth. The mother cried from the memories of what they went through in their 6 month stay. The son brought pictures to show me how small he was. The mother made a comment the made my mind spin. She said that it was so sad that there are women aborting babies at this age and here I am trying to save mine. I had no idea it was legal to do that at this gestation. *Not looking for a debate, just was sharing my day.
Please pray that Briella's PDA closes soon and she continues to tolerate her feedings.
The extremely cute hats in our pictures were made by Kati Smith. She has an Etsy shop where she makes photography props that are amazing!!!
http://www.etsy.shootbabe.com
She is beautiful! So glad to hear of the improvements. Prayers continue daily for all of you. God is her strength and yours too! God's Peace be with you!
ReplyDeleteI know you don't know me, I went to middle school with your husband, but I went through and read your entire blog from the beginning today. What an amazing journey you have had. My twin nephews were born as micropremies too this past Spring. They are 7 months now, adjusted age 3 months, and are doing great. I will be praying for your sweet girl and your family.
ReplyDeleteAwwwwwww.....BOTH eyes open in today's picture!!!
ReplyDeleteContinuing to keep you, and your family in my thoughts!
xoxox
God bless you and your family! Ur daughter is truly a miracle. Reading your blog has me me crying remember all those feelings of having a micro preemie. From the wating game of results to the first hold to the feelings of grief over losing the last part of your pregnancy. These babies are the biggest blessings and fighters God could make. Take comfort in the fact that the journey does end even when it seems like it won't. My daughter was born on Mothers Day at 26 weeks weighing 2lbs 1oz. She spent 4 months in the nicu and is finally home and thriving despite 2 surgeries and numerous setbacks. Everyday I heal a little more thru the grace of God. Praying for you and your family.
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